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Pink Sugar

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I've been busy lately, so I'm going to try my best to post about twice a month.

I was a dietitian at the age of 22,
and I had T-cell lymphoblastic lymphoma (
blood cancer)
about six months after I went to work.

​Malignant lymphoma metastasized to the trachea,
resulting in
tracheomalacia*,
respiratory failure due to tracheomalacia,
hypoxic encephalopathy due to respiratory failure,
and
left hemiplegia due to hypoxic encephalopathy.

*As an after-effect, my voice is smaller than that of an average person,
so it isn't easy to hear my voice.

I'm posting my efforts, which are
triple pain, as a journal.
-  I had cardiopulmonary arrest once ( I was told April Fool's Day 2022 lol ).

Hopefully, you can see the post description.

​I hope it will be an encouragement to people with rare intractable diseases.
I started this because I want to tell as many people as possible about

the anguish and feelings of people with disability.
 

My slogan is:

"I can't just sit around if there's a future!"

"Even though I can't speak, I don't want to give up."

"I want people to know about people with diseases and disabilities."

Illness took away my voice.

I couldn't walk normally.

But, I'll never cry or break down.

I resist being silenced and repressed to render me unfit to walk.

I'm not afraid, I will keep trying and raise my voice.
 

keep living!

Don't look down on me!

I speak up to raise awareness of disabilities and invisible rare diseases.
 

Even if the disease strikes me, I will not be broken.

I don't want to live in silence.
 

I can't accept death quietly.

Although my voice and legs are about to break now,

I have decided to let many people know.
 

Even if you want to see me scared,

I will not stop trying.

Stay alive.

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